The Global Alliance for Transplantation
- The Global Alliance for Transplantation
- 1. Introduction
- 2. Goals and major strategic directions
- 3. Proposed Structure and Governance of the Alliance
- 4. Relationships to other organisations and associations
- 5. Relationships to the Pharmaceutical industry
- 6. Strategic Directions
- 7. Implementation Timetable
- All Pages
6. Strategic Directions
6.1 Statistics - To foster the global collection and analysis of data on donation and transplantation of all organs and cells.
There are currently a number of initiatives directed at the collection of donation and transplantation statistics on a global scale. Perhaps the most developed are in the area of unrelated haematopoetic stem cell (HSC) transplantation where the Bone Marrow Donor Registries around the world collaborate to present data on 8.5 million potential donors of HSC’s on the internet and collect and publish data annually on all unrelated HSC transplants performed globally (www.worldmarrow.org).
In the area of solid organ donation and transplantation there is a variety of aproaches to data collection and analysis. The Council of Europe, through the endeavors of the Spanish ONT, has reported annually on the cadaver and living donation rates observed in a number of countries both within Europe and more widely from countries where the data are available. The Collaborative Transplant Study, based in Heidelberg, Germany, is probably the best example of an international data collection designed to address scientific questions in organ transplantation. There are many excellent national registries which analyse specific data sets, such as the ANZDATA registry in Australia and New Zealand and the UNOS derived Scientific Registry of transplant Recipients (SRTR) in the USA.
Despite these enormous efforts it is not possible to access an accurate source on the number, rates and outcomes of all forms of transplantation globally, the best that we can achieve is estimations. This is not a sound basis for the future and thus one of the crucial strategies for the Global Alliance in Transplantation is to foster the collection and analysis of global data.
6.2 Education – To develop and share expertise in transplantation globally.
The availability of expertise in transplantation continues to grow through the application of many efforts designed to provide education and training in both formal and informal environments. If transplantation therapy is to be more widely adopted it will be crucial to have a global capacity to train and educate specialist surgeons, physicians, pathologists, nurses, donor and transplant coordinators and allied health professionals. An important component of increasing the capacity of transplant centres will be to provide comprehensive approaches to education, rather than an occasional courses or individual attachments to transplant units. This strategy must thus address the strengths and weaknesses of available education mechanisms and develop the capacities needed to augment current processes.
6.3 Professional Standards – To develop and maintain global professional standards in the provision and management of transplantation.
There is a lack of published professional standards that are needed to provide a sound basis for progress and development of transplantation services. The first steps have been taken recently to provide a professional evaluation and determination of the standards that should be applied to the assessment, surgery and follow up of living kidney donors. There is a need to develop equivalent standards in many areas of clinical practice, based upon evidence where it is available and upon peer evaluated analysis and decision where it is not available.