2013 - ISODP 2013 Congress


Mini-Oral 2 on Increasing Donation

9.3 - Living Donor Observatory (LIDOBS community)

Presenter: Marti, Manyalich Vidal, Barcelona, Spain
Authors: Marti Manyalich, Ana Menjivar, Xavier Torres, Josep M. Peri, Ignacio Revuelta, Fritz Diekmann, Constantino Fodevila, Santiago Sanchez, David Paredes, Chloë Balleste


Living Donor Observatory (LIDOBS community)

Marti Manyalich1,2, Ana Menjivar2, Xavier Torres2, Josep M. Peri2, Ignacio Revuelta2, Fritz Diekmann2, Constantino Fodevila2, Santiago Sanchez2, David Paredes1,2, Chloë Balleste1

1School of Medecine, University of Barcelona, Barcelona, Spain, 2Hospital Clinic of Barcelona, Barcelona, Spain

Introduction: LIDOBS is a multidisciplinary community composed by international experts on Living Donation interested to join efforts to improve the quality of the procedures and to establish international consensus in order to protect Living donors’ (LD) health and safety through the development of registries and follow-up the living donation impact on donors’ life.

Objective: To promote a High Quality of Living Donation programs offering a scientific platform that will help to assure transparency, quality and safety of the programmes.

Methodology

LDs’ protection: by providing detailed information about the process, detecting new ethical dilemmas and being coherent on legislation issues.

Registry: Implement a database model for LD registration and data analysis. The model is created based on three levels: mandatory, recommended and excellence.

Follow-up: Detect the key points for the outcome, donors’ satisfaction and mid to long-term impact of donation process on donor’s quality of life and their psychological well-being.

Research: Continuous scientific researches to identify the best practices, to develop quality indicators and make recommendation for LD safety.

Results: On-line database registry: Currently there are more than 1600 registered LDs with mandatory data from 19 centres in 13 European countries. The actual registry is improving and enhanced with data from other countries. Such registry will help the research and the quality of the procedure.

LDs assessment/follow-up surveys (tools surged by EULID and ELIPSY projects available in several EU languages): LIDOBS enable the continuity of their application.

Conclusion: Promoting LD follow-up and international registration practices through research and data analysis, and establishing a consensus among professionals will benefit transplant professionals and the quality of LD programs. The centres that accomplish the LIDOBS recommendations should be considered as excellence centres.

1A great gratitude goes to all professionals that were involved in all the stages of the following projects: - ELIPSY project - EULID project - FIS project (Co-founded by European Regional Development Fund FEDER)

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