Living Donor Observatory (LIDOBS community)

Marti Manyalich^1,2, Ana Menjivar², Xavier Torres², Josep M. Peri², Ignacio Revuelta², Fritz Diekmann², Constantino Fodevila², Santiago Sanchez², David Paredes^1,2, Chloë Balleste¹

¹School of Medecine, University of Barcelona, Barcelona, Spain, ²Hospital Clinic of Barcelona, Barcelona, Spain

Introduction: LIDOBS is a multidisciplinary community composed by international experts on Living Donation interested to join efforts to improve the quality of the procedures and to establish international consensus in order to protect Living donors’ (LD) health and safety through the development of registries and follow-up the living donation impact on donors’ life.

Objective: To promote a High Quality of Living Donation programs offering a scientific platform that will help to assure transparency, quality and safety of the programmes.

Methodology

LDs’ protection: by providing detailed information about the process, detecting new ethical dilemmas and being coherent on legislation issues.

Registry: Implement a database model for LD registration and data analysis. The model is created based on three levels: mandatory, recommended and excellence.

Follow-up: Detect the key points for the outcome, donors’ satisfaction and mid to long-term impact of donation process on donor’s quality of life and their psychological well-being.

Research: Continuous scientific researches to identify the best practices, to develop quality indicators and make recommendation for LD safety.

Results: On-line database registry: Currently there are more than 1600 registered LDs with mandatory data from 19 centres in 13 European countries. The actual registry is improving and enhanced with data from other countries. Such registry will help the research and the quality of the procedure.

LDs assessment/follow-up surveys (tools surged by EULID and ELIPSY projects available in several EU languages): LIDOBS enable the continuity of their application.

Conclusion: Promoting LD follow-up and international registration practices through research and data analysis, and establishing a consensus among professionals will benefit transplant professionals and the quality of LD programs. The centres that accomplish the LIDOBS recommendations should be considered as excellence centres.

¹A great gratitude goes to all professionals that were involved in all the stages of the following projects: - ELIPSY project - EULID project - FIS project (Co-founded by European Regional Development Fund FEDER)