Data Registry Dictionary. Standardizing the “Language” of transplantation

The global expansion of transplantation along with advances in immunology and technology have made evident the need to establish standardized definitions and metrics. Standardization is necessary to facilitate communication, perform regional and international comparisons, inform public policy, and improve the quality of care.

The Transplantation Society has established a work group to continue the work initiated by the WHO and ONT, resulting in the Global Glossary on donation and transplantation available in the WHO transplantation website: http://www.who.int/transplantation/activities/en.

The group which includes representatives from all established transplant registries met at the Vancouver TTS meeting in August 2010. Beatriz Dominguez-Gil from ONT presented information on metrics of deceased donation based on the critical pathway while Peter Nickerson from the Canadian Blood Services (CBS) led a discussion on evolving technologies and the need for standardization of terminology related to the HLA Laboratory. The group plans to develop and disseminate metrics and definitions through the TTS website, and to produce a position paper outlining the group’s goals and scope. Anyone interested in this work can contact the group co-chairs, John Gill (This email address is being protected from spambots. You need JavaScript enabled to view it. ) or Stephen McDonald (This email address is being protected from spambots. You need JavaScript enabled to view it. ).

Our Corporate Sponsors

TTS gratefully acknowledges the Corporate Partners whose generous support makes the work of the Society possible:

  • astellas
  • roche
  • sanofi