Psychosocial impact of donation process on the Living organ donors (FIS project)

Marti Manyalich Vidal¹, Ana Menjivar¹, Josep Maria Peri¹, Xavier Torres¹, Nuria Masnou³, Eva Oliver², Teresa Rangil⁴, Maribel Delgado⁵, Antonio Fernandez⁶, Ana Vila⁸, Montserrat Martinez⁷, Chloe Balleste¹, Jaume Grau¹, Amado Andres⁵, Ana Zapatero⁹, Laura Cañas⁴, Ricardo Lauzurica⁴, M. Pilar Gracia⁹, Yolanda Diaz⁹, Josep Maria Puig⁹

¹Hospital Clinic of Barcelona, Barcelona, Spain, ²Bellvitge Hospital, Barcelona, Spain, ³Vall d'Hebron Hospital, Barcelona, Spain, ⁴Germans Trias i Pujol Hospital, Barcelona, Spain, ⁵Hospital Universitario 12 de Octubre, Madrid, Spain, ⁶Complejo Universitario de A Coruña, A Coruña, Spain, ⁷Fundació Puigvert, Barcelona, Spain, ⁸Hospital Sant Joan de Deu, Barcelona, Spain, ⁹Hospital del Mar, Barcelona, Spain

Introduction: Living Donation has a positive impact on Living donors (LDs) in terms of their self-estimation and social value. However, an evaluated risk on their physical and psychosocial outcome is presented. Such risk appears to be linearly increased for a longer post donation time.

FIS project, 2011-2013, co-founded by European Regional Development Fund (FEDER), aims to evaluate the psychosocial outcome and the satisfaction level of Spanish kidney and liver living donors.

Objective: To analyze the impact of donation process on the LDs quality of life and psychological well-being and to evaluate the level of satisfaction received from the process.

Methodology: The population includes the LDs who donated in nine transplant centers all over Spain from year 2000 in continuity.

The project is developed in two simultaneous studies:

Prospective study- a longitudinal psychosocial follow-up of LDs, assessed in two moments pre and one year post donation.

Retrospective study- to evaluate the satisfaction level LDs received from the donation process. As assessment tool a new version of the EULID (European Living Donation and Public Health) satisfaction survey was designed.

The results are introduced in the database surged from EULID project, available on www.eulivingdonor.eu.

Results: The centers have adapted the methodology to their characteristics and resources. The studies are being developed independently and currently the project is in the data-analyses phase.

Nowadays, there are more than 400 LDs registered; respectively 90% are Kidney LDs and 10% Liver LDs.

Out of these approximately 214 LDs are included in the retrospective study and approximately 132 LDs in the prospective study.

Conclusion: Changes in the ability to manage or improve life stressors are fundamental for good psychosocial outcome on LDs. The LDs satisfaction is key point to ensure the overall quality and security of donation procedures.