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IRTA Allied Health Providers Webinar Series: Updates in Patient Care

The Allied Health Provider Committee of IRTA is pleased to present the first webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on nutritional interventions and physical outcomes in intestinal failure as well as analgesia post-intestine transplant. Each presentation will be 15 minutes in length followed by a 5-minute question period.

Wednesday, October 7, 2020 - 9:00AM EDT
Intestinal Failure And Transplant

Intestinal Failure And Transplant: Updates In Patient Care

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Webinar Summary:

The Allied Health Provider Committee of IRTA is pleased to present the third webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on factors that impact eating and the burden of care for children with intestinal failure, and the evaluation process for intestine transplant.   Each presentation will be 15 minutes in length followed by a 5-minute question period. 

The webinar is free for all IRTA and TTS members.

Discussant: Sara Mancell (UK), RD, MRes (Clin), BSc (Hons), BA (Hons)

Factors Impacting on Eating in Pediatric Intestinal Transplant Recipients: A Mixed-Methods Study

Sara has worked at King’s College Hospital NHS Foundation Trust since 2010 as Lead Children’s Dietitian. Her specialties include paediatric intestinal failure, parenteral nutrition, and hepatology. Prior to this, Sara worked at Barts and the London NHS Trust specializing in paediatric gastroenterology. Sara was awarded a BA (Hons) in Psychology and Health Studies in 1999 from Queen’s University, Canada, a BSc (Hons) in Dietetics in 2003 from Queen Margaret University College, Edinburgh and a Masters in Clinical Research in 2017 from St George’s, University of London.  She has written several book chapters and papers on liver disease and nutrition.  

Following this presentation, the participant will be able to:
  • List 3 positive factors that may influence eating following intestinal transplant.
  • Discuss the potential impact of a child frequently being nil by mouth in the first year of life.  
  • Briefly describe the potential positive influence that a caregiver of a child with intestinal failure could have on eating.

Discussant: Christina Belza (CAN), PhD(c ), MN, BScN

Predicting enteral autonomy in pediatric intestinal failure: The role of a disease severity model

Christina Belza is a nurse practitioner at the Hospital for Sick Children in Toronto and for the past 12 years has worked in the pediatric intestinal failure program. In her work capacity she manages inpatient and outpatient care for children receiving long-term parenteral nutrition for intestinal failure.  She is currently pursuing her PhD in clinical epidemiology with a focus on evaluating burden of care for caregivers of children with intestinal failure. Her research interests also focus on evaluating long-term outcomes for children with intestinal failure and implementation of novel therapies to improve long-term morbidity and mortality.

Following this presentation, the participant will be able to:
  • List 3 early predictors for achieving enteral autonomy in children with intestinal failure.
  • Briefly discuss the benefits that a prediction score can provide for patients and caregivers of children with intestinal failure.
  • Provide one benefit that a prediction score can have for the researchers evaluating outcomes in children with intestinal failure.

Discussant: Karin Edlund (Sweden), MSc, RN

Evaluation for Intestine Transplant: A Nursing Perspective

Karin is a senior specialist nurse within the Transplant Center of Sahlgrenska University Hospital in Gothenburg and has extensive experience in caring for solid organ transplant patients. In her current role as clinical transplant coordinator, Karin is responsible for the adult liver and multivisceral transplant program. This includes planning for evaluation, identifying nursing needs, identifying patient resources and risk factors, candidate listing, and medical follow-up and support during the waiting period. Karin has a special interest in the framework of Person-Centered Care (PCC) and has used this theory when supporting start-up of a new clinic for young adults in the transition from pediatric to adult care.

Following this presentation, the participant will be able to:
  • Summarize the inclusion criteria for listing as an intestinal transplant candidate.
  • Discuss the relevance of assessing quality of life (QoL) as  "soft" criteria for intestinal transplantation.
  • Identify relevant evaluation strategies for intestinal transplant candidates from a nursing perspective.

Lindsay Hogg (UK), RGN, RSCN

Moderator

Lindsay is the Principal Specialist Nurse for Hepatology and Transplantation at Birmingham Women’s and Children’s NHS Foundation Trust and has extensive experience in liver and intestine transplantation from pre-transplant assessment through transition to adult care. Her primary area of interest is in supporting families of children and young people with chronic illness and providing accessible information along with practical and emotional support.

Beverly Kosmach-Park, DNP, RN, FAAN

Organizer

Beverly is a Clinical Nurse Specialist for the Department of Transplant Surgery at Children’s Hospital of Pittsburgh. She works with liver and intestine transplant patients and their families from evaluation through chronic care post-transplant and transition to adult care. Beverly is Chair of the Allied Health Providers Committee of IRTA and is a member of the IRTA Council.

Local Times:

Wednesday, October 7, 2020 - 9:00AM EDT (Montreal time)
AccraWed 1:00 pmEdmonton *Wed 7:00 amNairobiWed 4:00 pm
Addis AbabaWed 4:00 pmFrankfurt *Wed 3:00 pmNassau *Wed 9:00 am
Adelaide *Wed 11:30 pmGuatemala CityWed 7:00 amNew DelhiWed 6:30 pm
AlgiersWed 2:00 pmHalifax *Wed 10:00 amNew Orleans *Wed 8:00 am
AlmatyWed 7:00 pmHanoiWed 8:00 pmNew York *Wed 9:00 am
Amman *Wed 4:00 pmHarareWed 3:00 pmOslo *Wed 3:00 pm
Amsterdam *Wed 3:00 pmHavana *Wed 9:00 amOttawa *Wed 9:00 am
AnadyrThu 1:00 amHelsinki *Wed 4:00 pmParis *Wed 3:00 pm
Anchorage *Wed 5:00 amHong KongWed 9:00 pmPerthWed 9:00 pm
AnkaraWed 4:00 pmHonoluluWed 3:00 amPhiladelphia *Wed 9:00 am
AntananarivoWed 4:00 pmHouston *Wed 8:00 amPhoenixWed 6:00 am
Asuncion *Wed 10:00 amIndianapolis *Wed 9:00 amPrague *Wed 3:00 pm
Athens *Wed 4:00 pmIslamabadWed 6:00 pmReykjavikWed 1:00 pm
Atlanta *Wed 9:00 amIstanbulWed 4:00 pmRio de JaneiroWed 10:00 am
Auckland *Thu 2:00 amJakartaWed 8:00 pmRiyadhWed 4:00 pm
BaghdadWed 4:00 pmJerusalem *Wed 4:00 pmRome *Wed 3:00 pm
BangaloreWed 6:30 pmJohannesburgWed 3:00 pmSalt Lake City *Wed 7:00 am
BangkokWed 8:00 pmKabulWed 5:30 pmSan Francisco *Wed 6:00 am
Barcelona *Wed 3:00 pmKarachiWed 6:00 pmSan JuanWed 9:00 am
BeijingWed 9:00 pmKathmanduWed 6:45 pmSan SalvadorWed 7:00 am
Beirut *Wed 4:00 pmKhartoumWed 3:00 pmSantiago *Wed 10:00 am
Belgrade *Wed 3:00 pmKingstonWed 8:00 amSanto DomingoWed 9:00 am
Berlin *Wed 3:00 pmKinshasaWed 2:00 pmSão PauloWed 10:00 am
BogotaWed 8:00 amKiritimatiThu 3:00 amSeattle *Wed 6:00 am
Boston *Wed 9:00 amKolkataWed 6:30 pmSeoulWed 10:00 pm
BrasiliaWed 10:00 amKuala LumpurWed 9:00 pmShanghaiWed 9:00 pm
BrisbaneWed 11:00 pmKuwait CityWed 4:00 pmSingaporeWed 9:00 pm
Brussels *Wed 3:00 pmKyiv *Wed 4:00 pmSofia *Wed 4:00 pm
Bucharest *Wed 4:00 pmLa PazWed 9:00 amSt. John's *Wed 10:30 am
Budapest *Wed 3:00 pmLagosWed 2:00 pmStockholm *Wed 3:00 pm
Buenos AiresWed 10:00 amLahoreWed 6:00 pmSuvaThu 1:00 am
CairoWed 3:00 pmLas Vegas *Wed 6:00 amSydney *Thu 12:00 midnight
Calgary *Wed 7:00 amLimaWed 8:00 amTaipeiWed 9:00 pm
Canberra *Thu 12:00 midnight Lisbon *Wed 2:00 pmTallinn *Wed 4:00 pm
Cape TownWed 3:00 pmLondon *Wed 2:00 pmTashkentWed 6:00 pm
CaracasWed 9:00 amLos Angeles *Wed 6:00 amTegucigalpaWed 7:00 am
Casablanca *Wed 2:00 pmMadrid *Wed 3:00 pmTehranWed 4:30 pm
Chicago *Wed 8:00 amManaguaWed 7:00 amTokyoWed 10:00 pm
Copenhagen *Wed 3:00 pmManilaWed 9:00 pmToronto *Wed 9:00 am
Dallas *Wed 8:00 amMelbourne *Thu 12:00 midnight Vancouver *Wed 6:00 am
Dar es SalaamWed 4:00 pmMexico City *Wed 8:00 amVienna *Wed 3:00 pm
DarwinWed 10:30 pmMiami *Wed 9:00 amWarsaw *Wed 3:00 pm
Denver *Wed 7:00 amMinneapolis *Wed 8:00 amWashington DC *Wed 9:00 am
Detroit *Wed 9:00 amMinskWed 4:00 pmWinnipeg *Wed 8:00 am
DhakaWed 7:00 pmMontevideoWed 10:00 amYangonWed 7:30 pm
DohaWed 4:00 pmMontréal *Wed 9:00 amZagreb *Wed 3:00 pm
DubaiWed 5:00 pmMoscowWed 4:00 pmZürich *Wed 3:00 pm
Dublin *Wed 2:00 pmMumbaiWed 6:30 pm

* Adjusted for Daylight Saving Time (70 places).
Wed = Wednesday, October 7, 2020 (136 places).
Thu = Thursday, October 8, 2020 (7 places).
UTC (GMT/Zulu)-time: Wednesday, October 7, 2020 at 13:00:00
UTC is Coordinated Universal Time, GMT is Greenwich Mean Time.
Great Britain/United Kingdom is one hour ahead of UTC during summer.


Monday, July 20, 2020 - 9:00AM EDT
Pediatric Intestinal Failure and Transplant

Pediatric Intestinal Failure and Transplant: Updates in Patient Care

Discussant: Elizabeth Fleagle (US)
Senior staff psychologist at Henry Ford Health System, Transplant Institute

Psychological Challenges in Adult Multivisceral Patients

Discussant: Lisa Vokes (UK)
Specialist Dietitian in Gastroenterology, Intestinal Failure and Intestinal Transplant

An Algorithm for Progression from PN to Oral Nutrition

Discussant: Velma Wright (UK)
Senior Specialist Support Worker / Social Worker for the Liver Unit at Birmingham Women’s and Children’s Hospital, Birmingham, UK

Strategies to Support Families Facing Intestinal Transplant

Moderator: Jemma Mears (UK)
Principal Physiotherapist for Hepatology and Transplantation at Birmingham Women’s and Children’s NHS Foundation Trust
Organizer: Beverly Kosmach-Park, DNP, RN, FAAN
Clinical Nurse Specialist
Department of Transplant Surgery
Children's Hospital of Pittsburgh
Pittsburgh, PA, USA

Webinar Summary:

The Allied Health Provider Committee of IRTA is pleased to present the second webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on nutritional interventions, psychological challenges and psychosocial stressors in intestinal failure and intestine transplant. Each presentation will be 15 minutes in length followed by a 5-minute question period.

Psychological Challenges in Adult Multivisceral Patients

Elizabeth Fleagle (US)

Elizabeth Fleagle, PsyD. Dr. Fleagle is a senior staff psychologist at Henry Ford Health System, Transplant Institute.  In her current role she manages transplant psychology services in the kidney, multi-visceral, and live liver donation programs.  She has expertise in pre-surgical evaluations and the management of psychiatric issues throughout the transplant process.  She is actively working to enhance and expand current psychosocial services by developing protocols to reduce non-adherence in post-kidney transplant patients and evaluating and streamlining psychosocial intervention in multi-visceral transplant patients.  Dr. Fleagle has presented and published on behavioral health integration, psychosocial issues, and multicultural considerations in transplant.  She currently is on the executive committee for the American Society of Transplant, Psychosocial and Ethics Community of Practice.

Psychological Challenges in Adult Multivisceral Patients

Following this presentation, the participant will be able to:

  1. Summarize current research findings in psychological presentation of adult multi-visceral transplant patients
  2. Discuss the observed course of psychological symptoms throughout transplant process
  3. Identify future areas of study for addressing psychological needs of patients.

An Algorithm for Progression from PN to Oral Nutrition

Lisa Vokes (UK)

Lisa Vokes  BSc RD. Specialist Dietitian in Gastroenterology, Intestinal Failure and Intestinal Transplant
Lisa is a specialist dietitian within the small bowel intestinal transplant program of Oxford University Hospitals NHS Trust. She also provides specialist dietetic input for Gastroenterology patients and is the lead dietitian for the intestinal failure nutrition team. Lisa is Chair of the British Dietetic Association’s Gastroenterology specialist group and committee member of the Council for Allied Health Research (CAHPR) Oxfordshire Hub.

An Algorithm for Progression from PN to Oral Nutrition

Following this presentation, the participant will be able to:

  1. Generally discuss the patients nutritional journey from transplantation surgery to discharge from hospital.
  2. Cite an overview of current research outcomes in progressing from PRN to oral nutrition
  3. Contribute within their practice to the proposed steps required as a health care community, building on the information available to health care professionals about nutrition management

Strategies to Support Families Facing Intestinal Transplant

Velma Wright (UK)

Velma Wright BSc, SW.  Senior Specialist Support Worker / Social Worker for the Liver Unit at Birmingham Women’s and Children’s Hospital, Birmingham, UK.  Velma has many years’ experience as a social worker, working on the Children’s Disability Team of the Birmingham City Council, in child protection investigations, and court work and permanency planning.  She has been the Liver Unit Senior Specialist Support Worker/Social Worker since 2010.

Strategies to Support Families Facing Intestinal Transplant

Following this presentation, the participants will be able to:

  1. List three stressors commonly encountered by families after intestine transplant.
  2. Discuss interventions that are most helpful to parents who are coping with an extended hospitalization.
  3. Discuss how community services can be implemented for long term care needs.

Moderator

Jemma Mears (UK)

Jemma Mears PT. Principal Physiotherapist for Hepatology and Transplantation at Birmingham Women’s and Children’s NHS Foundation Trust.
Jemma is the Principal Physiotherapist in transplant and has extensive experience in liver and intestine transplantation from pre-transplant assessment through transition to adult care.  Her primary area of interest is in developmental delay associated with liver/intestinal failure and transplantation and the long-term physical outcomes and physical health post-transplant.

Organizer

Beverly Kosmach-Park, DNP, RN, FAAN

Beverly is a Clinical Nurse Specialist for the Department of Transplant Surgery at Children’s Hospital of Pittsburgh. She works with liver and intestine transplant patients and their families from evaluation through chronic care post-transplant. Beverly is Chair of the Allied Health Providers Committee of IRTA and on the Board of Directors of IRTA.


Thursday, February 27, 2020 - 4:00 PM EST
Pediatric Intestinal Failure and Transplant

Pediatric Intestinal Failure and Transplant: Updates in Patient Care

Click here to view the recording (you must be logged into the website)

Discussant: Stephanie So, MSc. PT
Physiotherapist
The Hospital for Sick Children, Toronto
Transplant and Regenerative Medicine Centre
Group for Improvement of Intestinal Function and Treatment (GIFT)
University of Toronto
Toronto, ON, Canada
Discussant: Brooke Chapman, APD
Senior Clinician, Nutrition & Dietetics
Liver & Intestinal Transplant Unit. PhD Candidate
Austin Health
Victoria, Australia
Discussant: Carly Bambridge, CNS, RN
Clinical Nurse Specialist, Paediatric Intestinal Transplant
King's College Hospital
Institute of Liver Studies
Denmark Hill, London, UK
Moderator: Beverly Kosmach-Park, DNP, RN, FAAN
Clinical Nurse Specialist
Department of Transplant Surgery
Children's Hospital of Pittsburgh
Pittsburgh, PA, USA

Webinar Summary:

The Allied Health Provider Committee of IRTA is pleased to present the first webinar of the Allied Health 2020 Speaker Series. This webinar will focus on patient care strategies and outcomes within intestinal rehabilitation and transplant. The topics presented will provide updates focusing on nutritional interventions and physical outcomes in intestinal failure as well as analgesia post-intestine transplant.   Each presentation will be 15 minutes in length followed by a 5-minute question period. 

Growth Factors in Intestinal Failure

Brooke Chapman, APD

Brooke Chapman, BAppSci, Masters (Nutrition and Dietetics), Accredited Practising Dietitian, PhD (c)
Brooke is a senior clinical dietitian from Melbourne, Australia, and has worked in the Liver and Intestinal Transplant Unit at Austin Health for almost 15 years. She is experienced in the nutritional management of liver disease, intestinal failure and transplant. Brooke is active in clinical research to enhance outcomes for these patients with complex nutritional needs and is currently undertaking a PhD in this area.
Following participation in this session, the learner will be able to:

  1. Develop an awareness of growth factors currently available for clinical use in patients with SBS-IF.
  2. Have a general understanding of the mechanism of action of GLP-2 and how it enhances enteral absorption.
  3. Describe the most recent ‘real-world’ outcomes of patients with SBS-IF treated with teduglutide.

Physical Activity, Strength and Fatigue in Children with Intestinal Failure on Parenteral Nutrition

Stephanie So, MSc. PT

Stephanie is a physiotherapist from SickKids in Toronto, Canada and works in the Liver and Intestinal Transplant and Intestinal Rehabilitation Program (GIFT).  She is also a lecturer at the University of Toronto. Stephanie has published on neurodevelopmental outcomes and physical function in children with intestinal failure, and physical function and activity outcomes in children post liver transplant. She is an active member of the IRTA Allied Health Committee.
Following participation in this session, the learner will be able to:

  1. Summarize current research findings looking at motor skills, strength and physical function in children with intestinal failure.
  2. Discuss differences in physical activity, strength, fatigue and physical function in children with intestinal failure compared to healthy controls.
  3. List several variables that may impact strength and agility in this population.

Analgesia Requirements for Patients with Chronic Intestinal Pseudo-Obstruction (CIPO) Post-Intestine Transplant

Carly Bambridge, CNS, RN

Carly is the lead nurse for Intestinal Transplantation at King’s College Hospital, London. Her role includes support and education for patients and their families from transplant assessment and continuing through long term follow-up after transplant. She is a member of the IRTA Allied Health Provider committee and has been involved in the organisation of the United Kingdom Small Bowel Transplant Meetings. She is also a member of the Multi-visceral and Composite Tissue Advisory Group (MCTAG) which advises the NHS Blood and Transplant service. Carly’s interests include health promotion post-transplant, the development of services to meet the needs of patients undergoing multi-visceral transplantation, and burden of care post-transplant.

Following participation in this session, the learner will be able to:

  1. Discuss two symptoms that patients with CIPO may experience as part of this disorder.
  2. List two reasons why pain may have an impact on recovery following intestinal transplantation.
  3. Identify a patient you have cared for post-transplant. Reflect on the pain management strategy and the patient's underlying diagnosis. Were there any issues with pain management post-operatively?

Moderator

Beverly Kosmach-Park, DNP, RN, FAAN

Beverly is a Clinical Nurse Specialist for the Department of Transplant Surgery at Children’s Hospital of Pittsburgh. She works with liver and intestine transplant patients and their families from evaluation through chronic care post-transplant. Beverly is Chair of the Allied Health Providers Committee of IRTA and on the Board of Directors of IRTA.

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