2013 - ISBTS 2013 Symposium
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Posters and Exhibition
15.3 - Development of an easy to read tool for education after bowel transplant and for use as an easy reference guide at home.
Presenter: Carly, Bambridge, , United Kingdom
Authors: Carly Bambridge1, Richard Hammond1, Jonathan Hind1
Development of an easy to read tool for education after bowel transplant and for use as an easy reference guide at home.
Carly Bambridge1, Richard Hammond1, Jonathan Hind1
1King's College Hospital NHS Trust, London, United Kingdom
Introduction
The safe discharge home of patients after bowel transplantation depends upon an individualised education programme for patients and care-givers to ensure problems are recognised and advice sought appropriately. Education after transplant focuses on the signs and symptoms of complications; and other areas of health promotion such as food safety. However, some families struggle with comprehension and are overwhelmed with the level of information.
Method
An easy to read tool was previously used to help educate a mother with learning disabilities prior to discharge of her three year old daughter who had undergone liver transplantation. We adapted the existing tool in conjunction with our learning disabilities coordinator to become specific for bowel transplantation, and for the individual patient. Information was presented in a clear and easy to read format, summarising the key signs to look out for, when to make contact with the transplant unit, and whom to make contact with. We also developed clear illustrations to present the Information in a pictorial form to support those with illiteracy or lack of comprehension. The tool supported the education given during meetings with the transplant nurse specialist. It was then given to parents on discharge to provide an easy reference guide for home.
Results
Parents reported the tool was a useful guide and source of information to have at home, and helped them understand what to do in the event of their child becoming unwell. It successfully prompted appropriate action. The easy to read format has also helped siblings and other family members understand the information given after bowel transplantation.
Conclusion
The development of an individualised easy-to-read information tool for families after bowel transplant has been useful in transplant education, and has been used successfully once discharged home.
In future we plan to expand this tool for use in more patients and in other complex conditions.
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