Caring for a child undergoing a transplant is an incredibly challenging journey. Caregivers often face intense emotional, social, and financial pressures during this time. In this session, we’ll explore a range of supportive resources available to families and share practical strategies to help caregivers care for their own well-being, while continuing to support their loved ones.
Learning Objectives
Identify and connect caregivers with practical resources, including emotional, social, and financial support to help navigate the challenges of caring for a child undergoing transplantation.
Equip caregivers with self-care strategies that promote resilience and well-being while balancing the demands of supporting a medically fragile child.
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Nurse Practitioner, Johns Hopkins Children’s Center Baltimore, MD, USA
Tina Thomas, CPNP, is a dedicated Pediatric Nurse Practitioner and Post-Liver Transplant Coordinator at Johns Hopkins Children’s Center, a role she continues to serve in with dedication for over five years. During this time, she has been actively involved with SPLIT (Studies of Pediatric Liver Transplantation), contributing to the organization’s mission of advancing pediatric liver transplantation care. Tina joined the SPLIT Multi-D Committee and later the Webinar Committee to promote vital discussions on pediatric liver transplantation, focusing on comprehensive care that extends beyond the operating room to encompass the whole patient.
Clinical Pediatric Psychologist – Ochsner Children’s Hospital
New Orleans, LA, USA
Dr. Alexis Liberto practices pediatric psychology at Ochsner Health in New Orleans. She received her Bachelor of Arts in psychology from Hawai`i Pacific University and her PhD in clinical psychology from the University of Mississippi. She is part of Ochsner's pediatric multi-disciplinary solid organ transplant teams where she helps children and their families adapt and adjust to the changes that occur when diagnosed with a chronic medical condition and/or undergo organ transplantation. As a woman of color, Dr. Liberto is passionate about expanding access and services to underserved communities and helping families feel confident in effectively managing their healthcare.
Advanced Practice Nurse, Nemours Children’s Hospital Delaware
Wilmington, DE, USA
Dana Mannino, MSN, NP-C is an Advanced Practice Nurse within the Division of Solid Organ Transplantation at Nemours Children’s Hospital, Delaware. Dana is the Chair of the SPLIT Multi-Disciplinary Committee. She is also a member of the SPLIT Education Committee.
Parent, Living Donor, PFEP Member Madison, WI, USA
Sean Eiles is a proud father, husband, and liver donor, living in Madison, Wisconsin with his husband Steven and their daughter Ellie. After marrying in 2019, Sean and Steven pursued adoption and welcomed Ellie into their family in 2023. Just months later, Ellie was diagnosed with biliary atresia, a rare liver disease that required a transplant to save her life. In an unexpected twist, Sean turned out to be a match and became his daughter’s living donor. In August 2024, both underwent successful surgeries at UW Health. Today, Ellie is thriving—walking, eating, and enjoying life as a joyful toddler. Sean shares his family’s story to offer hope, solidarity, and strength to other parents navigating the journey of pediatric liver transplant.
Pediatric Transplant Social Worker, Pediatrtc Liver and Heart Transplant Ochsner Children's, New Orleans, LA, USA
Amy Ronnenburg, LMSW, is a Pediatric Transplant Social Worker at Ochsner Children's in New Orleans, LA, where she supports both the pediatric liver and heart transplant teams within the Ochsner Multi-Organ Transplant Institute. With over two decades of experiencei in transplant social work, Amy brings a wealth of knowledge and compassion to her role—having first worked in adult liver transplant before transitioning fully to the world of pediatric transplant. Amy plays a Vital role in the Pediatric Transplant Transition Program, guiding patients and families through the complex journey of transplantation. She is an active member of the Soctety of Transplant Social Workers and SPLIT, contributing to improved outcomes and compassionate care in pedtatnc transplant medicine.
Pediatric Psychologist
Pancreas and Liver Care Center
Nationwide Children’s Hospital
Hannah McKillop, PhD is a pediatric clinical psychologist at Nationwide Children’s Hospital (NCH) where she serves patients across hospital settings within the Division of Gastroenterology, Hepatology, and Nutrition, with specific focus on liver and pancreas diseases as well as intestinal rehabilitation. She is an Assistant Professor of Psychology in the Department of Pediatrics at The Ohio State University. Dr. McKillop is a member of the Society of Pediatric Liver Transplantation (SPLIT) Multidisciplinary and Psychology Committees.