Our goal is to provide excellent physical and emotional health for all people with intestinal failure through rehabilitation and transplantation.


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President's Message

Dr. Gabriel E. Gondolesi
IIRTA PRESIDENT

Dear Colleagues and friends,

In a little over a month, I will have the pleasure of seeing most of you in Chicago, at CIRTA 2023. During this event, I will conclude my presidency and therefore, would like to update you on my second year of service as President of IIRTA.

Prof. Gabriel E. Gondolesi MD, MAAC, FACS.
President, IIRTA


Updates on our second-year activities
WEBSITE
We continue to update and include all of our new and developed initiatives. Information about Intestinal Failure and Rehabilitation Centers, registries, surveys, joint educational activities, awards and winners are available. Our page is also linked to the Lift-Echo page.
REGISTRIES
  • IITR: Eric Pahl and Robert Venick are finalizing the analysis of the fresh data loaded in our Red-Cap database by the participating members as requested, in order to have the presentation ready for CIRTA 2023.

    I would like to thank both Eric and Robert for the concept of developing Data Collaboration Agreements to facilitate the individual centers IRB approval, and also for sharing the information with other National and International services, after SRTR and NHS, Eurotransplant and Argentina were initiated, reducing the workload for the participating members, and increasing compliance to our data base.

  • IFR: The preliminary report of the registry was presented at PIFRS by Dr. Yaron Avitzur. The project continues to evolve with 25 centers now participating worldwide, with 345 children enrolled. Starting at CIRTA 2023, the Peds IFR will become one of the major highlights of coming meetings.

    The Adult IF registry is evolving and conversations are in place with ESPEN in order to work on a joint project. Advances will be reported at CIRTA.

  • Intestinal failure centers will be identified, contacted to become members and will be added to the web page.
EDUCATION

Webinars have become a major interest for our young faculties and AHP worldwide. Six new topics were chosen with the participation of world-renowned experts. More are being planned after CIRTA.

During CIRTA 2023, 3 workshops have been developed in order to finalize the first IRTA guidelines/position statements on:

  1. Current Indications and Worldwide Priority Listing Criteria for Patients Needing Intestine-containing grafts, led by Dr. Rodrigo Vianna;
  2. Guideline Development for Medical and Surgical Intestinal Rehabilitation, led by Dr. Alan Buchman and;
  3. Allied Health Guideline Development, led by Christina Belza and Beverly Kosmach-Park.

On May 22nd, we will have the first scientific and educational activity as a result of the Chapters initiative (see below). Dr. Gustaf Herlenius and Dr. Mihai Oltean prepared a 2 days scientific program, celebrating the 25th anniversary of their Visceral Transplantation program and first “Sweden and Norway IRTA chapter” activity for the region. Thanks for inviting me.

In collaboration with “Transplant Unwrapped”, by request of its president Michele Pfab, the book “Elpis the Elephant gets an Intestinal Transplant”, was translated to Spanish by Florencia Gondolesi, and the new version will be presented at CIRTA 2023. I would like to thank Michele for the work done to educate patients and families, and for being interested to reach out countries with different languages, we will continue working together.

COMMITTEES

In order to organize and continue promoting the activities with, among and between the current IIRTA Chapters, a new “Chapters Committee” has been created and I have the honor to have been elected as the chair.

A “Past Presidents Committee” was also approved by council. The idea was to recognize our past leaders, to maintain their engagement with IIRTA, to serve as a consultant group, and to facilitate fundraising for the association. Dr. Simon Horslen, will be the first leader of this prestigious committee.

If you are interested in being involved in our committees and have some expertise to share, we welcome you. Please contact our Manager, Suzanne Landis at Suzanne.Landis@tts.org.

IIRTA CHAPTERS

A total number of 12 IIRTA Chapters, have applied and have been approved. Some Chapters were single country applications like New Zealand, Uruguay, Japan, Australia, Argentina, Colombia, United Kingdom, Spain; others joint efforts like Sweden and Norway, and we are pleased by having additional countries that never belonged to our association like Iran, Singapore and China.

Twenty-five new members have joined our association as result of this initiative.

Plaques will be awarded at CIRTA 2023 for the new ones, and starting at CIRTA 2025, we will have a dedicated educational session, to learn about the different realities we face worldwide, in the management of Intestinal Failure, Rehabilitation and Transplant.

CIRTA 2023

Despite the impact of the post-pandemic effects which are now being realized, and a significant and worsening worldwide economic crisis looming, our Congress team promises to bring you wonderful event.

172 abstracts have been submitted. IPTA and IIRTA will have a common session. Surgical aspects of rehabilitation surgery and transplantation will have separate and dedicated sessions and there will be a video session for surgeons, complemented with classical surgical debates.

Physicians and AHP, will enjoy presentations on current management of intestinal failure, PN and its complications, microbiome, hormonal regulation of intestinal adaptation, immunology and immunosuppression, the challenge of the re-transplantation, the burden of chronic care, telemedicine, and outcomes after intestinal transplant.

For the first time, we will have an activity organized by Women in Transplantation (WIT).

Scientists will be delighted with the advances on intestinal bioengineering, and tolerance. On the last day, we will all enjoy the results of the workshops, and latest analysis of our registries. Alan, Enrico and Chicago are waiting for us!!!

INITIATIVES TO BE FOLLOWED

Business Meeting - CIRTA 2023 - Monday, July 3 at 8AM
We will need the support of your vote, during CIRTA 2023. Your participation at the Business Meeting which will take place on Monday, July 3 at 8AM (local time) will be very important, because our council would like to propose 2 modifications to the IRTA bylaws:

  1. Name change of the Incorporation
  2. Change to the bylaws - Section 2, Selection of Members

Please click the links below to review official voting documents which all members attending the Business meeting will receive and be asked to vote on.

Name/Member Change

Certificate of Amendment

Amended Bylaws
Personal Notes

I joined this association as a young fellow back in 2001, and the first meeting I attended was ISBTS 2003 in Miami. Since then, I have found the participants as the most collegial, caring and inspirational, compared to many other societies I have been part of.

The fact of having the chance to discuss the issues that you observed in your own patients directly with the world experts, was unique. But more unique was the chance of having encouraging feedback, even in the worst-case scenarios.

ISBTS members at that time, helped promote young members, motivating us with passion to interact between centers, to evolve multicenter studies, and to develop basic science research. New procedures and all novel initiatives were always received with high empathy and enthusiasm.

After returning to Argentina and starting our program, we aimed to bring the event for the first time to Latin America. The memories of ISBTS 2015, and the Tango, are still present in many of our minds. The impact of the meeting at a local and regional level was incredible and the development was invigorated after the meeting.

Twenty years after joining the society, I had the pleasure of becoming the IRTA President. The last two years, went extremely fast, and now it is time for me to thank you all.

Thanks for the opportunity.
Thanks for your commitment.
Thanks for your willingness to adapt to new proposals.
Thanks for being patient.
Thanks for your cooperation.
Thanks for the productive and passionate discussions.
Thanks for maintaining the spirit of the association throughout the years.
Thanks for allowing me to dream together about the future of our association.

Very special thank you to the entire IRTA council (Jonathan, Simon, Yaron, Helen, Beverly, Palle, Rodrigo, Taizo and Lisa) They never had this many monthly meetings on project updates and tasks to do as long as 2 hrs each, for 24 months. For that… many, many thanks.

Sincere appreciation to Alan and Enrico for all the work done for CIRTA 2023. I’m looking forward to enjoying the event together.

Special thanks to Suzanne Landis, the heart and soul of the association. I will miss the long Zoom meetings to address all different tasks.

Last, but not least, my life appreciation to Carolina, Ignacio, Manuel and Florencia (“The Gondoletta”). Without their support, I could never have achieved that much.

“Thousands of candles can be lit from a single candle, and the life of the candle will not be shortened. Happiness never decreases by being shared.” - The Buddha

It was a pleasure for me, sharing part of my life with you, learning with you and serving you all.

Sincerely,

Prof. Gabriel E. Gondolesi MD, MAAC, FACS
President, IRTA

P.S. Relax… re-elections are not allowed in the by-laws!!!


IIRTA CHAPTERS

The Council of the International Intestinal Rehabilitation and Transplant Association (IIRTA) would like to announce the approval of a new policy to promote the development of local chapters within the organization.

Start A Local Chapter Today!


International Intestinal Transplant Registry

Download the 2019 Final Report and the Data Entry Primer Presentation

VISIT THE ITR PAGE


International Intestinal Failure Registry (IFR)

Goal
The IFR aims to improve the lives of children with intestinal failure by creating a large international database that will serve as a reliable, contemporary repository to promote research, develop best practices, and guide evidence-based management in pediatric intestinal failure
Center benefits
  • Participation in a large international network to study pediatric intestinal failure
  • REDCap based electronic database for each participating center
  • Center report with registry benchmarks for specific outcomes and IF complications
  • Access to the registry data and research opportunities
  • Funding for large volume centers (>10 patients)
Inclusion criteria
  • Children younger than 18y with intestinal failure (≥ 60 days on PN)
  • Followed by intestinal rehabilitation program (defined as a minimal program staffing of a pediatric gastroenterologist, surgeon, dietitian and a nurse)
Endorsements

The IFR is endorsed by the North American Society for Pediatric Gastroenterology and Nutrition (NASPGHAN) and the American Society for Parenteral and Enteral Nutrition (ASPEN)

The IFR is supported by non-restricted and education grants by Takeda LTD and Stanford University & the Lucile Packard Children’s Hospital

Call for Center Participation - To join the registry or for more information please contact Dr. Yaron Avitzur and Nilosa Selvakumaran ifr@intestinalregistry.org

SPLIT-IIRTA EMAIL LISTSERV

Open to all Healtcare professionals! We have partnered with our fellow TTS Section, SPLIT, to develop a listserv to help track and address both COVID 19 related queries as well as general discussions related to the care of hepatology, pre- and post-liver and intestinal transplant patients.

Learn Intestinal Failure TeleECHO Clinic (LIFT-ECHO)

IIRTA Survey - Outcomes for Abdominal Wall Closer in Transplant Patients

We encourage our members to take this multi-center survey to collect and analyze the world-wide practice and long-term outcome after (non-)vascularized fascia transplantation.

Full Details

As you will certainly know, non-vascularized rectus fascia (NVRF) transplantation was first described in 2009 (Gondolesi et al. Transplantation 2009;87:1884–8) as a novel technique to close the abdominal wall after solid organ transplantation. By using this technique, extensive abdominal wall repair was avoided and the technique is gaining interest worldwide. Later the vascularized fascia transplant was introduced as alternative (VRF).

So far, experience with (N)VRF transplantation is scarcely reported. At our transplant center in Leuven, Belgium, we performed our first case of NVRF transplant in September 2020. Dr. Nele Van De Winkel is an abdominal surgeon at our center who is specialized in abdominal wall surgery. Based on her specialty she developed a specific interest regarding (N)VRF and is currently working on a PhD thesis on this topic. She recently completed a systematic literature review, published in Transplantation Reviews (2021 Jun 4;35(4):100634). This review revealed that data on long-term outcome following NVRF regarding the strength and functionality of the abdominal wall is scarce.

Therefore we took the initiative for a multi-center survey on this topic to collect and analyze the world-wide practice and long-term outcome after (non-)vascularized fascia transplantation.

For this survey we have developed an excel sheet (1 excel file) and survey manual (PDF). We would be very grateful if you or one of your team members could have a look into this questionnaire and return your response directly to Nele (nele.vandewinkel@uzleuven.be) (1 sheet for each individual case).

It would be worth considering to publish in the near future the results of this multicenter survey if we can collect a sufficient number of cases performed worldwide. Participating centers would of course be granted a co-authorship.

Many thanks for your help and support. Please do not hesitate to contact us directly in case you have any further questions on this email.

Best regards,
Laurens Ceulemans (transplant surgeon)
Nele Van De Winkel (abdominal surgeon and PhD student)

On behalf of the Leuven LIFT team

New ICD-10CM and ICD-11 Codes for Short Bowel Syndrome AND Intestinal Failure

If you have specific questions or comments, please e-mail Alan Buchman directly at: a.buchman@hotmail.com


Read more

Alan Buchman, Loris Pironi, and Stephane Schneider have petitioned the Medical and Scientific Committee (MASC) of the WHO to accept Intestinal Failure-Associated Liver Disease (IFALD) and sub-divisions of the newly approved Short Bowel Syndrome code into SBS with colon in continuity and SBS without colon in continuity as new diagnostic codes for ICD-11 (effective January 1, 2022). If accepted by the WHO, the additional codes would be approved in early 2022 and added to ICD-11. It is important that we show our support by voting to "agree" with this proposal.

In order to do so, you will need to go to the WHO's ICD-11 webpage and create an account and search for "short bowel syndrome" in the search box. This will show support that member countries should see so that they vote affirmative in early 2021 to finalize the codes. You will need to do the same for Intestinal Failure-Associated Liver Disease, which is listed under “Specific Liver Disease” rather than Intestinal Failure at the WHO’s request. Definitions are included.

A proposal was also submitted to the CDC for updating the ICD-10CM with the newly proposed codes as well. We are waiting to learn when the new codes for Short Bowel Syndrome and Intestinal Failure will become effective in ICD-10CM. IRTA will be sending a letter of support to the CDC on behalf of our members. It will be important for the IRTA to stay involved in this process.


Congratulations to our recent award winners

Congratulations to our 2023 Living Legends Recipients

Nicolas Duchateau Young Investigator Award

The International Intestinal Rehabilitation and Transplantation Association (IIRTA) has founded the Nicolas Duchateau Young Investigator Award to recognize a young scientist who has contributed to the field of intestinal failure or transplantation by sharing his or her research findings at the biennial IIRTA Conference.

The Transplant Infectious Disease Section (TID) has prepared a new update and guidance on the 2019 Novel Coronavirus (2019-nCov) for transplant ID clinicians.

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Contact

Staff Directory
+1-514-874-1717 ,X : 216
sections@tts.org

Address

Intestinal Rehabilitation & Transplant Association
International Headquarters
740 Notre-Dame Ouest
Suite 1245
Montréal, QC, H3C 3X6
Canada