Welcome to Intestinal Rehabilitation and Transplant Association
IMPORTANT - INTESTINAL TRANSPLANT REGISTRY Webinar
Thursday, May 18, 2017 - 8:30 am PDT (GMT -7) / 11:30 am EDT (GMT -4)
Join us on Thursday, May 18 for a special presentation by Dr. Matthew Everly to discuss the Intestinal Transplant Registry.
Agenda for the session:
- update of the changes to the registry
- review of problems already reported for people to look out for.review of issues with passwordsopen forum
IRTA Announces Relaunch of Intestinal Transplant Registry in Partnership with The Terasaki Foundation
Dear Program Director or Coordinator,
As you know, the Intestinal Transplant Registry has been an important and historically unprecedented resource regarding the outcomes of transplant recipients with nearly 100% capture of intestine transplants performed worldwide. Since the last IRTA meeting in Argentina, the registry has transitioned to The Terasaki Institute and new account information has been sent to each program for data entry.
This transition provides our Association with a valuable and powerful resource to expand the utility of the registry in new directions and will in the future serve as a strong foundation for research in the field of intestine transplantation. I would encourage all programs (i.e. all of the members of the IRTA) to work diligently to update outcomes on prior transplant recipients and enter new patients since the last database lock as soon as possible. The transition has unfortunately delayed the initiation of data collection and so this year there will be a shortened window for data entry, making it all that much more important for a concentrated effort.
Please log in ASAP to enter as much of the data as possible by June 1st, 2017 so that preliminary analysis can be initiated and the results prepared for the June Congress in New York. If you have not logged in to the database because you do not know your username and password or do not have access, please contact This email address is being protected from spambots. You need JavaScript enabled to view it. for information on how to gain access for yourself and/or your data coordinator.
The International Intestinal Transplant Registry (IITR)
How to Edit or Add a Patient in the new ITRA (using RedCap)
Thank you in advance,
Debra L. Sudan, MD
IRTA President
2015 Symposium Highlights (Argentina - June 2015) |
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President's Message
I am honored and humbled to serve as your newly elected President of the Intestinal Rehabilitation and Transplant Association. The XVII bi-annual international small bowel transplant symposium (ISBTS) meeting in Buenos Aires, Argentina was held in June 2015 and was a resounding success. Evidence of the success is shown by the record attendance, fabulous presentations on multi-institutional trials and collaborations to answer scientific questions and what I would call infectious enthusiasm for the care of patients with intestinal failure along the entire continuum of disease. Although many contributed to the meeting success, I want to personally recognize the substantial contributions by the Chair of the local organizing committee, Gabriel Gondolesi and the immediate past President, Doug Farmer for all their hard work to make the meeting such a huge success.
For those reading carefully above you may have noted that the name of our organization has changed from the Intestinal Transplant Association to the Intestinal Rehabilitation and Transplant Association. This new name has been discussed over several years and was adopted this year by the council to more accurately reflect the entire spectrum of our bi-annual meeting. As many of you recognize, our organization has for years reported on the newest developments in the fields of intestine transplantation and intestine rehabilitation. The broader scope of our meeting was evident as we celebrated 3 Living Legends (Tom Starzl, Stanley Dudrick, and Masayuki Okumura)and their essential contributions to our field. In addition 9 distinct working groups summarized the state of the current literature in the clinical care and basic science of intestine rehabilitation and transplantation and identified gaps in knowledge and priorities to guide future research efforts. Keep your eyes out in The American Journal of Transplantation for the summaries which are anticipated to be published soon.
The final piece I want to share with you is that the ITA council had the first ever strategic planning retreat and I look forward to sharing further details of our plans in future newsletters. In the meantime, if you are interested in participating in the activities of the Association in between the Bi-annual meetings, please join one of our committees or working groups. We have active committees in research and allied health and are organizing a work group for social media and there are numerous ongoing education and research projects. We welcome your contributions and suggestions.
Sincerely,
Debra L. Sudan,
IRTA President
